Programs of the Hemophilia Society of Bosnia and Herzegovina in 2009
The Hemophilia Society of Bosnia and Herzegovina (HSBH) is non-government and not-for-profit organization dedicated to improving the lives of people with hemophilia. We constantly work on numerous programs in partnership with healthcare professionals, government and people with hemophilia and their families to secure the best possible care, treatment and support.
Some of the ongoing programs and planned activities are:
- Establishment of national Hemophilia Treatment Center, which is one of the main priorities in work of Hemophilia Society of Bosnia and Herzegovina;
- Creation of national hemophilia patients registry which has been set as one of the most important goals, and it can be seen as the integral part of plans concerning establishment of national Hemophilia Treatment Center;
- Organization of the third summer camp for persons with hemophilia in Bosnia and Herzegovina;
- Preparing and realization of specific physiotherapy programs for persons with hemophilia;
- Attendance at the most important events related to hemophilia treatment and care; and
- Organization of the Annual General Meeting of the Society.
03.08.2010 WFH’s 29th World Hemophilia Congress Held in Buenos Aires, Argentina (July 10 – 14, 2010), Hemophilia 2010 World Congress provided the world’s largest international meeting of members of the global bleeding disorders community. The XXIX International Congress of the World Federation of... more...
03.08.2010 WFH’s 29th World Hemophilia Congress – Mark Skinner’s opening plenary The sessions of the XXIX International Congress of the World Federation of Hemophilia (WFH) were opened with the WFH president’s plenary, focusing on our global family. In particular, Mark Skinner, WFH president, addressed the needs of the underserve... more...
02.06.2009 10th anniversary of the Hemophilia Society of Bosnia and Herzegovina This year Hemophilia Society of Bosnia and Herzegovina celebrates 10th anniversary of its dedicated work for hemophilia care improvements in Bosnia and Herzegovina. We stand proud of our achievements so far and we are determined to continue with our ... more...
17.09.2007 Workshop on application of physiotherapy at persons with hemophilia Musculoskeletal complications of hemophilia continue to be prevalent despite advances in hematological therapies. Poor musculoskeletal structure leads to increased bleeding episodes and further joint and muscle destruction.
It is proven that appro... more...
30.11.2006 1st Hemophilia Symposium in Bosnia and Herzegovina Even though number of participants was limited by the organizer over 100 people from Bosnia and Herzegovina, Ireland, Canada, Slovenia, Croatia, Serbia and Macedonia gathered in Sarajevo to attend first Hemophilia Symposium in Bosnia and Herzegovina,... more...
30.11.2006 Program of the 1st Hemophilia Symposium in Bosnia and Herzegovina The Symposium program featured recognized experts in hemophilia care and research, making it the preeminent event for those interested in hemophilia.
All presentations were well attended and topics ranged from the organization and development of h... more...
30.11.2006 Sponsors of the 1st Hemophilia Symposium in Bosnia and Herzegovina Hemophilia Society of Bosnia and Herzegovina, as the organizer of the 1st Hemophilia Symposium in Bosnia and Herzegovina has been strongly supported by its Twinning partner - Irish Hemophilia Society and World Federation of Hemophilia. Irish Haemophi... more...
20.05.2006 Vision of WFH: Treatment for all The WFH has changed a lot in the 43 years since founder Frank Schnabel started working to improve global hemophilia treatment and care.
During that time, this organization evolved into a professional, international, not-for profit organization th... more...
Hemophilia Society Of Bosnia And Herzegovina
Pofalićka 17, 71000 Sarajevo, Bosnia and Herzegovina
Telephone/Fax: + 387 (0) 33 652 532 E-mail: uhbh@uhbh.org.ba
